%0 Journal Article %A France, Nadine Ferris %A Mcdonald, Steve H. %A Conroy, RonĂ¡n %A Byrne, Elaine %A Mallouris, Chris %A Hodgson, Ian %A Larkan, Fiona N. %D 2019 %T "An unspoken world of unspoken things": a study identifying and exploring core beliefs underlying self-stigma among people living with HIV and AIDS in Ireland. %U https://repository.rcsi.com/articles/journal_contribution/_An_unspoken_world_of_unspoken_things_a_study_identifying_and_exploring_core_beliefs_underlying_self-stigma_among_people_living_with_HIV_and_AIDS_in_Ireland_/10776080 %2 https://repository.rcsi.com/ndownloader/files/19288835 %K HIV %K stigma %K self-stigma %K core beliefs %K PLHIV %K inquiry-based stress reduction %K cognitive behavioural therapy %K IBSR %K CBT %K self-worth %K Epidemiology %X

PRINCIPLES: Human immunodeficiency virus (HIV) related self-stigma--negative self-judgements resulting in shame, worthlessness and self-blame - negatively influences access to care and treatment, and overall quality of life for people living with HIV (PLHIV). Despite evidence that high levels of self-stigma exist among PLHIV, and is experienced to a far greater extent than stigma received from the broader community, there is a paucity of research aimed at understanding causes and functions of self-stigma, and an absence of interventions to mitigate its harmful effects. Understanding the core beliefs underlying self-stigma is therefore essential.

METHODS: This pilot study used a qualitative approach to analyse interviews and written statements to uncover core beliefs underlying self-stigma, the functions thereof, and strategies used to overcome it, among a heterogeneous group of PLHIV in Ireland.

RESULTS: Core beliefs underlying HIV-related self-stigma were uncovered and grouped into four categories: disclosure; sexuality and sexual pleasure; self-perception; and body, illness and death. Reported functions of self-stigma included contributing to maintaining a "victim" status; providing protection against stigma received from others; and justifying non-disclosure of HIV status. To cope with self-stigma, participants highlighted: community involvement and professional development; personal development; and connection to others and sense of belonging. Findings were also used to create a conceptual framework.

CONCLUSIONS: This study helps fill identified gaps in knowledge about self-stigma as experienced by PLHIV. By understanding the core beliefs driving self-stigma, it will be possible to create targeted interventions to challenge and overcome such beliefs, supporting PLHIV to achieve improved wellbeing and lead productive lives free of self-limitation and self-judgement.

%I Royal College of Surgeons in Ireland