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A protocol for the establishment and evaluation of an older adult stakeholder panel for health services research [version 1; peer review: 1 approved, 1 approved with reservations]

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posted on 2022-12-12, 10:06 authored by Mairéad Conneely, Pauline Boland, Aoife O'Neill, David Byrne, Sinead Cronin, Dominic Quinn, Dominic Trépel, Siobhán Leahy, Jon Salsberg, Rose Galvin, Katie Robinson

Background: There has been a policy shift towards public and patient involvement (PPI) in population health and health services research in Ireland and internationally. Despite growing empirical evidence that PPI can have positive impacts on the quality and appropriateness of health research and innovation, little is known about the involvement and impact of older adults as research partners. The aim of this study is to 1) describe the process of establishing a PPI panel of older adults, family carers and ageing research academics and 2) to evaluate the impact of this research partnership on all members of the PPI panel. 

Methods: A partnership-focused framework will guide the recruitment and establishment of a PPI panel of older adults, family carers and academic researchers. Between eight and ten older adults and four and six family carers with experience of using health services will be recruited through advertisement in community locations and through gatekeepers in a range of non-governmental, voluntary, and community organisations of older adults in the Mid-West region of Ireland. Academic researchers will be recruited through an established Ageing Research Centre at the University of Limerick. Data collected will include an activity log and records of all meetings, recorded panel discussions and recorded individual interviews with all members of the research team at key time points (12 and 24 months after establishment of the panel). Data will be transcribed, managed in NVivo and analysed using an inductive approach to thematic analysis. Dissemination of research findings will be facilitated by the research partnership team of academics and older adults. 

Discussion: This study will identify learning about the process of establishing a PPI panel guided by a partnership-focused framework and will qualitatively evaluate the impact of participation in a PPI panel for all members of the research team.

Funding

Health Research Board (HRB) of Ireland through the HRB Collaborative Doctoral Awards under Grant CDA-2018-005 (Right Care Programme)

History

Comments

The original article and an updated version may be available on https://hrbopenresearch.org/

Published Citation

Conneely, M, et al. A protocol for the establishment and evaluation of an older adult stakeholder panel for health services research [version 1; peer review: 1 approved, 1 approved with reservations]. HRB Open Res 2020, 3:1

Publication Date

14 January 2020

PubMed ID

32760878

Department/Unit

  • General Practice
  • HRB Centre for Primary Care Research

Publisher

F1000 Research Ltd

Version

  • N/A