Patient's spirituality perspectives at the end of life: a qualitative evidence synthesis.
journal contributionposted on 2020-09-14, 16:33 authored by Barbara ClyneBarbara Clyne, Sinéad M. O'Neill, Daniel Nuzum, Michelle O'Neill, James LarkinJames Larkin, Mairin Ryan, Susan SmithSusan Smith
Background: Understanding patient perceptions of their spiritual needs when approaching the end of life is essential to support the delivery of patient-centred care.
Aim: To conduct a qualitative evidence synthesis on spirituality and spiritual care needs at the end of life in all healthcare settings from the patients' perspective.
Design: Studies were included where they were primary qualitative studies exploring spirituality in patients with a life expectancy of 12 months or less in any setting. Two reviewers independently screened titles, extracted data and conducted methodological quality appraisal. A thematic synthesis was conducted. Grading of Recommendations, Assessment, Development and Evaluation (GRADE) - Confidence in the Evidence from Reviews of Qualitative research (CERQual) was used to summarise the certainty of the evidence.
Data sources: Six databases (Medline, Embase, Cochrane, CINAHL, PsycINFO, Applied Social Science Index and Abstracts) were searched from inception up to January 2019.
Results: Fifty papers (42 unique datasets), incorporating data from 710 patients were included. Studies recruited from a mix of inpatient, outpatient, hospice and community settings across 12 different countries. Three overarching themes were generated: the concept of spirituality, spiritual needs and distress, and spiritual care resources. Relationships were an intrinsic component of spirituality.
Conclusion: Meeting patients' spiritual needs is an integral part of end-of-life care. This work emphasises that supporting relationships should be a central focus of spiritual care for patients at the end of life.
Health Research Board (HRB-CICER-2016-1871)
CommentsThis article has been accepted for publication in BMJ Supportive and Palliative Care, 2019 following peer review, and the Version of Record can be accessed online at https://spcare.bmj.com/content/early/2019/12/11/bmjspcare-2019-002016
Published CitationClyne B, O’Neill SM, Nuzum D, O’Neill M, Larkin J, Ryan M, Smith S. Patients’ spirituality perspectives at the end of life: a qualitative evidence synthesis. BMJ Supportive and Palliative Care. 2019; Nov 26: bmjspcare-2019-00216.
- General Practice
- HRB Centre for Primary Care Research
- Population Health and Health Services
- Accepted Version (Postprint)